A possible discovery as to why some live longer than others!

Just wanted to share this cool study I read this evening, scientific advancements in gene discovery is so cool! Sequencing the genes of these five Boston Children’s patients — a cohort known as “long-term non-progressors”— the researchers found a set of rare and never-before-discovered genetic variants that might help explain their longevity and stable lung […]

Updated Research for CF Drugs

I know it’s been a while since I’ve shared some new information that has been in the Drug Pipeline for CF. This first one isn’t for Little Miss Khaos (her mutation is DDF508) but it is great news for those that use Kalydeco! You can learn more about all of the drugs going through studies […]

They’ve started Phase 3!

  Meesha has the most common mutation of CF, Double Delta F508. If you’ve been following our blog then you know that we’ve been following an on going study that deals with this mutation! Well they just announced that they are moving into phase 3! What can this mean for Meesha: Within the next 5 […]