A possible discovery as to why some live longer than others!

Just wanted to share this cool study I read this evening, scientific advancements in gene discovery is so cool! Sequencing the genes of these five Boston Children’s patients — a cohort known as “long-term non-progressors”— the researchers found a set of rare and never-before-discovered genetic variants that might help explain their longevity and stable lung […]

Cystic Fibrosis Awareness Facts

Here is a list of Cystic Fibrosis Facts that you can use in raising awareness. I will continue to add facts as I discover more, if you have any suggestions feel free to comment below and I will add it! You can see the facts below in a sharable format on our Facebook page. Sharable […]

Two new Medical Advancements

I wanted to share two great reads regarding CF advancements that have happened recently.

Positive Pseudomonas Culture

We received our first positive culture for Pseudomonas, it felt surreal having dreaded that culture for 5 years now. Part of me feels like I should go cleaning crazy around our house and replace everything, but I know logically that it is every where and it was only a matter of time.You can read more […]

Writing the Perfect 504 Plan

I know we homeschool but I wanted to create a post that had all the information I could find on creating a perfect 504 plan for you and your children. If you have other examples or links that you found helpful in writing yours please leave them in the comments and I will add them […]