Follow Kitty Khaos on Her Adventures!
Just wanted to share this cool study I read this evening, scientific advancements in gene discovery is so cool! Sequencing the genes of these five Boston Children’s patients — a cohort known as “long-term non-progressors”— the researchers found a set…
Here is a list of Cystic Fibrosis Facts that you can use in raising awareness. I will continue to add facts as I discover more, if you have any suggestions feel free to comment below and I will add it!…
I wanted to share two great reads regarding CF advancements that have happened recently. (more…)
We received our first positive culture for Pseudomonas, it felt surreal having dreaded that culture for 5 years now. Part of me feels like I should go cleaning crazy around our house and replace everything, but I know logically that…
I know we homeschool but I wanted to create a post that had all the information I could find on creating a perfect 504 plan for you and your children. If you have other examples or links that you found…