Just wanted to share this cool study I read this evening, scientific advancements in gene discovery is so cool!

Sequencing the genes of these five Boston Children’s patients — a cohort known as “long-term non-progressors”— the researchers found a set of rare and never-before-discovered genetic variants that might help explain their longevity and stable lung function.

Here is a link to the full article > Why do some patients live longer than others?

A possible discovery as to why some live longer than others!
Must Have Products for a Cystic Fibrosis Family
Posted inCF & Organization

Must Have Products for a Cystic Fibrosis Family

I wanted to write a post, of products that have made our life easier day to day. If you have any products that you love, post them in the comments and I’ll add them to this post! Having a child with Cystic Fibrosis is very time consuming through treatments and enzymes, any products that can help make things faster/easier are awesome! I am going to make a list, then go into them more below if you want to read the why.