Just wanted to share this cool study I read this evening, scientific advancements in gene discovery is so cool! Sequencing the genes of these five Boston Children’s patients — a cohort known as “long-term non-progressors”— the researchers found a set of rare and never-before-discovered genetic variants that might help explain their longevity and stable lung […]
Here is a list of Cystic Fibrosis Facts that you can use in raising awareness. I will continue to add facts as I discover more, if you have any suggestions feel free to comment below and I will add it! You can see the facts below in a sharable format on our Facebook page.
I wanted to write a post, of products that have made our life easier day to day. If you have any products that you love, post them in the comments and I’ll add them to this post! Having a child with Cystic Fibrosis is very time consuming through treatments and enzymes, any products that can help make things faster/easier are awesome! I am going to make a list, then go into them more below if you want to read the why.
Written By: Mary Gabriel, her daughter Allissa has the Cystic Fibrosis mutation DDF508, and her Facebook Page is Allissa’s Fight ———————————————— This is Elly. She is an elephant. Allissa’s elephant to be exact. Elly wears twelve years of love & tears. She is a symbol of where we have been & what we have survived… […]
I want to compile a list of great resources to about Cystic Fibrosis for a young Adult audience. If you know of any others please let us know in the comments and I will update this list.
I want to compile a list of great resources to help explain Cystic Fibrosis to children. These would all be great for your children, or to take to school for classmates. If you know of any others please let us know in the comments and I will update this list.