Clinic Visit 6.1.17

Height – 3ft 5in

Weight – 37 lbs

Everything at this appointment was great. Her lungs sounded clear and they were happy with her weight gain. She had her annual blood draw and x-ray which both came back great. Since there was no new progression on her xrays from the previous year the nurse said that this level seems to be her new normal.

We discussed Orakmbi again since little miss will be of age to try it in December. It does require liver and eye exams due to possible side effects. So we’ll readdress once we go to clinic that month.

She is also clear of the Pseudomonas!

Post Author: Little Miss Khaos' Mom