CF Resources – Children Edition

I want to compile a list of great resources to help explain Cystic Fibrosis to children. These would all be great for your children, or to take to school for classmates. If you know of any others please let us know in the comments and I will update this list.

1. Mallory’s 65 Roses – “The engaging story of Mallory, a creative and energetic little girl afflicted with cystic fibrosis (CF), an inherited lung disease. She explains her condition and its ramifications in her own words, painting a picture accessible to children and poignant to adults.“My mom says that doctors are working hard to find a cure for CF, a way to make kids with CF all better. She says that they are close to finding a cure right now. When they do, CF will stand for ‘cure found.’ I can’t wait for that day.””

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2. Taking Cystic Fibrosis to School – “These beautifully illustrated and fun-to-read storybooks simplify and normalize complicated childhood conditions, like cystic fibrosis. When read aloud, other children can identify why a peer may be treated differently and begin to empathize with them. In addition, children whose conditions set them apart as being different begin to feel accepted and safe. Each book includes a Kids’ Quiz to reinforce new information and Ten Tips for Teachers to provide additional facts and ideas for teacher use.

In Taking Cystic Fibrosis to School, Jessie explains to her classmates that even though she has cystic fibrosis, she can still attend school.”

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3. Cadberry’s Letters – “Cadberry’s mom is very forgetful. Every time they visit his doctor together she talks about C & F. She never remembers the other letters. When Cadberry draws a set of letters to help his mother remember them all, he discovers what C & F really mean and how those two tiny letters affect so much of his life. Developed for pre-school-age children, Cadberry’s Letters uses simple, easy-to-follow language to explain Cystic Fibrosis and the daily care that goes along with it in terms young children can understand. Children will learn along with Cadberry about things like Pancreatic Enzymes, Chest Physical Therapy and more. Bright, full-page illustrations bring the story to life and feature a lot of the equipment and medications CF patients may use in their daily lives.”

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4. Sticky Icky Booger Bugs – “There are 30,000 children each year diagnosed and battling cystic fibrosis. There is no cure for this progressive disease. Sticky Icky Booger Bugs is the tale of a boy’s battle with cystic fibrosis as he attempts to avoid the hospital. Kory is just like any other child. He loves recess, playing soccer and exploring his neighborhood with his best friend. With every puff, cough, and sneeze, Kory keeps the sticky icky booger bugs away so he can have fun every day!”

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5. Little Brave One – “See a day in the life of a preschooler with CF.”

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6. Cystic Fibrosis and You – “This book is all about having a positive attitude in life and accomplishing your dreams. My hope in writing this book is to give encouragement to children and teens with cystic fibrosis. My sisters Bonnie and Kate accomplished everything in this book and more with CF. Never let cystic fibrosis hold you back from living life to the fullest.”

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Post Author: Little Miss Khaos' Mom