CF Parenting and Working From Home

When you have a child with CF keeping them healthy and being available for all of their appointments and hospital stays is top priority. When both parents have out of the house jobs this can become tiresome and hard to manage. For the first 2 years of our daughters life I was able to stay […]

Must Have Products for a Cystic Fibrosis Family

I wanted to write a post, of products that have made our life easier day to day. If you have any products that you love, post them in the comments and I’ll add them to this post! Having a child with Cystic Fibrosis is very time consuming through treatments and enzymes, any products that can help make things faster/easier are awesome! I am going to make a list, then go into them more below if you want to read the why.

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It Takes a Village: Allissa’s Fight

Written By: Mary Gabriel, her daughter Allissa has the Cystic Fibrosis mutation DDF508, and her Facebook Page is Allissa’s Fight ———————————————— This is Elly. She is an elephant. Allissa’s elephant to be exact. Elly wears twelve years of love & tears. She is a symbol of where we have been & what we have survived… […]