I can’t believe I am just now discovering Overnight Oats. This has been a life saving breakfast in our household. It has the added benefit of being calorie packed too! I can make it the night before and Little Miss Khaos can wake up in the morning, get it out of the fridge and eat […]
I know we homeschool but I wanted to create a post that had all the information I could find on creating a perfect 504 plan for you and your children. If you have other examples or links that you found helpful in writing yours please leave them in the comments and I will add them […]
When you have a child with CF keeping them healthy and being available for all of their appointments and hospital stays is top priority. When both parents have out of the house jobs this can become tiresome and hard to manage. For the first 2 years of our daughters life I was able to stay […]
I wanted to write a post, of products that have made our life easier day to day. If you have any products that you love, post them in the comments and I’ll add them to this post! Having a child with Cystic Fibrosis is very time consuming through treatments and enzymes, any products that can help make things faster/easier are awesome! I am going to make a list, then go into them more below if you want to read the why.
Written By: Mary Gabriel, her daughter Allissa has the Cystic Fibrosis mutation DDF508, and her Facebook Page is Allissa’s Fight ———————————————— This is Elly. She is an elephant. Allissa’s elephant to be exact. Elly wears twelve years of love & tears. She is a symbol of where we have been & what we have survived… […]
I want to compile a list of great resources to about Cystic Fibrosis for a young Adult audience. If you know of any others please let us know in the comments and I will update this list.
I want to compile a list of great resources to help explain Cystic Fibrosis to children. These would all be great for your children, or to take to school for classmates. If you know of any others please let us know in the comments and I will update this list.